List of biobanks explained
A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks.__TOC__
Classification
Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.
Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease.[1] Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.[2]
List of biobanks |
Biobank | Affiliation | Focus | Type | Location | Founding | Notes |
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All of Us | | Population | non-profit | United States | | |
Autism Genetic Resource Exchange | Autism Speaks | Autism | non-profit | North America and Asia | | |
Avon Longitudinal Study of Parents and Children | University of Bristol | | non-profit | United Kingdom | 1990 | [3] [4] |
BioBank Graz | Medical University of Graz | | non-profit | Austria | | [5] |
BioBank Japan | RIKEN, University of Tokyo | Population, personalized medicine | non-profit | Japan | 2003 | [6] |
Canadian Biosample Repository | University of Alberta | | non-profit | Canada | | |
CARTaGENE biobank | Centre hospitalier universitaire Sainte-Justine | | non-profit | Quebec | 2009 | [7] [8] |
Cooperative Human Tissue Network | | Cancer | government | USA | 1987 | |
Coriell Institute for Medical Research | | Genetic Disorders, rare diseases, Stem Cells | non-profit | United States | 1953 | |
DeCODE genetics | | | commercial | Iceland | | [9] |
Estonian Genome Project | University of Tartu | | non-profit | Estonia | 2000 | |
EuroBioBank | | Rare diseases | non-profit | Europe | | |
FINBB | | Population | non-profit | Finland | | [10] |
FinnGen | | Population, disease focused | public-private | Finland | 2017 | [11] |
Generation Scotland | NHS Scotland | | government | Scotland | 1999 | [12] [13] |
Genomics England | | Rare diseases, cancer | public-private | England | 2013 | [14] |
HUNT Biobank | Norwegian University of Science and Technology | | non-profit | Norway | 2002 | |
Integrated Biobank of Luxembourg | Luxembourg Institute of Health | Cancer, immunology | | Luxembourg | | |
Interdisziplinäre Biomaterial- und Datenbank Würzburg | University of Würzburg & Universitätsklinikum Würzburg | | public agency | Würzburg, Germany | 2013 | [15] |
Kaiser Permanente Research Bank | Kaiser Permanente | Population | | United States | 2016[16] | [17] |
Lifelines | University of Groningen & University Medical Centre Groningen | Healthy aging | non-profit | Groningen, The Netherlands | 2006 |
Million Veterans Project | United States Department of Veterans Affairs | American veterans | non-profit | United States | | [18] |
MyCode | Geisinger Health System | Electronic health records, personalized medicine | commercial | Pennsylvania, United States | 2007 | [19] |
nPOD | University of Florida, JDRF | Diabetes | non-profit | United States | 2007 | [20] |
PATH Biobank | | Breast cancer | non-profit | Germany | 2002 | |
Plasma Services Group | | Autoimmune, Infectious, Coagulation, Diagnostics[21] | commercial | United States | 2017 | |
Sapien Biosciences | Apollo Hospitals & Saarum Innovations | Population, with special focus on tailoring treatment for Cancer | private | India (headquartered in Hyderabad) | 2012 | [22] |
| Research centre of the Montreal Mental Health Institute | Mental health | non-profit | Canada (Quebec) | 2012 | [23] |
The Malaysian Cohort | National University of Malaysia | | non-profit | Malaysia | 2003 | |
Tohoku Medical Megabank Project | Tohoku University, Iwate Medical University | Population, Birth and Three-Generation | non-profit | Japan | 2012 | [24] [25] |
UK Biobank | | | non-profit | United Kingdom | 2006 | [26] |
Biobank Sweden | Health and Social Care Inspectorate | Collaborative biobank infrastructure (nearly 250 biobanks) | government | Sweden | 2017 | [27] [28] | |
External links
Notes and References
- Bevilacqua . G. . Bosman . F. . Dassesse . T. . Höfler . H. . Janin . A. . Langer . R. . Larsimont . D. . Morente . M. M. . Riegman . P. . Schirmacher . P. . Stanta . G. . Zatloukal . K. . Caboux . E. . Hainaut . P. . The role of the pathologist in tissue banking: European Consensus Expert Group Report . Virchows Archiv . 456 . 4 . 449–454 . 2010 . 20157825 . 2852521 . 10.1007/s00428-010-0887-7.
- Riegman . P. H. J. . Morente . M. M. . Betsou . F. . De Blasio . P. . Geary . P. . Marble Arch International Working Group on Biobanking for Biomedical Research . Biobanking for better healthcare . Molecular Oncology . 2 . 3 . 213–222 . 2008 . 19383342 . 5527804 . 10.1016/j.molonc.2008.07.004.
- Boyd. A.. Golding, J. . Macleod, J. . Lawlor, D. A. . Fraser, A. . Henderson, J. . Molloy, L. . Ness, A. . Ring, S. . Davey Smith, G.. George Davey Smith. Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children. International Journal of Epidemiology. 16 April 2012. 42. 1. 111–127. 10.1093/ije/dys064 . 22507743 . 3600618.
- Levitt. Mairi. Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?. Health Care Analysis. 19. 3. 220–230. 10.1007/s10728-011-0193-9. 21915714. 2011. 13953737.
- Web site: About Biobank Graz. 2021-03-16.
- Nagai. Akiko. Hirata. Makoto. Kamatani. Yoichiro. Muto. Kaori. Matsuda. Koichi. Kiyohara. Yutaka. Ninomiya. Toshiharu. Tamakoshi. Akiko. Yamagata. Zentaro. Mushiroda. Taisei. Murakami. Yoshinori. March 2017. Overview of the BioBank Japan Project: Study design and profile. Journal of Epidemiology. en. 27. 3. S2–S8. 10.1016/j.je.2016.12.005. 5350590. 28189464.
- Awadalla. Philip . Catherine Boileau . Yves Payette . Youssef Idaghour . Jean-Philippe Goulet . Bartha Knoppers . Pavel Hamet . Claude Laberge. Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics. International Journal of Epidemiology. October 15, 2012. 1285–99. 10.1093/ije/dys160. 42 . 5 . 23071140. free .
- Web site: Cartagene. cartagene.qc.ca. 3 April 2013.
- Web site: From Genes to Drugs. decode.com. deCODE genetics. 2008-05-04. https://web.archive.org/web/20080509070851/http://www.decode.com/From-Genes-to-Drugs.php. 2008-05-09. dead.
- Web site: FinBioBank. en. 2019-11-23.
- Web site: FinnGen-tutkimushanke vie suomalaiset löytöretkelle genomitietoon Drupal. finngen.fi. 2019-11-23.
- Smith BH, Campbell H, Blackwood D, etal . Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability . BMC Medical Genetics . 7 . 74 . 2006 . 17014726 . 1592477 . 10.1186/1471-2350-7-74 . free .
- Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ . Some principles and practices of genetic biobanking studies . The European Respiratory Journal . 33 . 2 . 419–25 . February 2009 . 19181915 . 10.1183/09031936.00043508. free .
- Web site: Genomics England 100,000 Genomes Project. en-US. 2019-11-23.
- Web site: Interdisziplinäre Biomaterial- und Datenbank Würzburg . ukw.de. 2022-10-13.
- Web site: Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery . 11 April 2018 . Kaiser Permanente.
- Web site: Kaiser Permanente Research Bank . Kaiser Permanente . 8 November 2018.
- Gaziano. John Michael. Concato. John. Brophy. Mary. Fiore. Louis. Pyarajan. Saiju. Breeling. James. Whitbourne. Stacey. Deen. Jennifer. Shannon. Colleen. Humphries. Donald. Guarino. Peter. February 2016. Million Veteran Program: A mega-biobank to study genetic influences on health and disease. Journal of Clinical Epidemiology. en. 70. 214–223. 10.1016/j.jclinepi.2015.09.016. 26441289. free.
- Carey . David J. . Fetterolf . Samantha N. . Davis . F. Daniel . Faucett . William A. . Kirchner . H. Lester . Mirshahi . Uyenlinh . Murray . Michael F. . Smelser . Diane T. . Gerhard . Glenn S. . Ledbetter . David H. . The Geisinger MyCode community health initiative: an electronic health record–linked biobank for precision medicine research . Genetics in Medicine . Elsevier BV . 18 . 9 . 2016 . 1098-3600 . 10.1038/gim.2015.187 . 906–913. 26866580 . free . 4981567 .
- Web site: JDRF nPOD Network for Pancreatic Organ Donors with Diabetes. jdrfnpod.org. 2016-09-22.
- Web site: Plasma Services Group - The Difference is in The Data. 2020-12-11. Plasma Services Group. en-US.
- Web site: Sapien Biosciences Asia's first biobank led CDx & phenotypic drug discovery company. 2020-11-19. en-US.
- Web site: Banque Signature Accès aux données et aux biospécimens . 2023-03-27 . Banque Signature . fr-FR.
- Web site: 2015-02-10. ToMMo | Tohoku Medical Megabank Organization. 2021-12-27. ToMMo | Tohoku Medical Megabank Organization. ja.
- Web site: IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION. 2022-01-05. IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION. ja.
- Web site: UK Biobank. en-GB. 2019-11-23.
- Web site: Guide to Biobanks in Sweden . 2023-03-03 . biobanksverige.se . en-GB.
- Web site: About Biobank Sweden . 2023-03-03 . biobanksverige.se . en-GB.